Although rare diseases can be clinically and genetically very different, they share many common features, amongst which, the following facts:
MaRCHE is the result of a pledge to bring together the local players in the area of research into these rare diseases, the goal being to bring down the walls in our reflection on common issues in order to improve the way we manage these disorders.
The initiative was awarded a « label » by the A*MIDEX University Foundation, the APHM (the Marseilles Public Hospital Group) and Inserm (The French National Institute of Health and Medical Research). It is funded by the A*MIDEX Foundation.